Wednesday, December 24, 2008

Christmas is coming...fast!


Merry Christmas Eve!

Presents are finally wrapped, as of an hour ago :) The true test will see if they can make it through the curiosity of a dog and two cats. Seal still isn't feeling his best, choosing to lay either in the closet near the litter box or snuggle next to Caleb or I. He could of care less about the laser pointer game I was playing with Piper and ignored the bag of bows I had sitting on the floor.
He and his "sister" were found snuggling on our bed (a big no-no) one winter weekend....I took a picture and then promptly scooted them both out - cat hair in the blankets is no fun!


I've made puppy chow, homemade Chex-Mix and white chocolate popcorn. :) I need to melt some more chocolate for the white chocolate popcorn (with Kix and Fritos - YUM!). We tried last night and it was a disaster! I also made BBQ ribs in the slow-cooker last night! They were REALLY good (and I'm not a ribs lover by any means) but now I'm paying for it - anyone know how to get burnt BBQ sauce out of a slow-cooker? ACK!

We are watching Christmas movies today, snuggled up on the couch and just relaxing. We had fried eggs sandwiches and bacon for lunch *Hey, it's Christmas Eve!* and cinnamon twist things from Pillsbury this morning for breakfast. Dinner was supposed to be pot roast in the slow-cooker, but the burnt sauce that refuses to budge is posing a problem. So, pizza tonight. I still need to pull out the meat for the rest of the week but other than that, we're just sitting here, listening to the rain/sleet hit the windows and watching movies from when we were wee ones.

Here are pictures of our ornaments that we ordered for our babies. I apologize for the lack of....clarity and all-around nice-ness of the pictures. I was crying and the lighting stinks in our living room.


Tuesday, December 23, 2008

Houndini in the back seat....

Seal, our newest and oldest cat, is sick. Wheezing, puffy eyes, goopy eyes and sneezing, complete with brown guk. So I took him to the vet - 22.00 for a vet exam, immune system stimulant shot 17.00, antibiotic 23.66, eye ointment 11.25 and a antiviral medication (that both cats have to have in case Piper is sick, too. If she starts the brown guk in her nose and eyes, she'll need the antibiotic as well) that was 12.00. The cat cost us 85.91 for a respiratory infection :(
Caleb was mad and so am I - I honestly didn't think that he would need that much or that it would COST that much. Caleb thinks that he could have gone without all the meds and just let it run it's course. I asked the vet and she said that Seal could have gotten sicker without meds because of his age and the fact that he's got the crap in his throat and chest.
He goes back for a re-check next Tuesday and Ebony needs to go in for her re-check on her medications.....I love my animals, but I hate that they get sick when we have the least amount of money.
Of the three animals, he is the LEAST fun to deal with when it comes to medication - claws out, biting...the whole nine yards. At least this time, he doesn't need a pill. Just some liquid, a powder on his food and eye ointment. God help me.

And the lovely fluff ball (he really does look like a fluff ball! He's a Persian) also has a new trick - he used his teeth/front paws (although I don't know how - he doesn't have claws on the front, so that wouldn't have helped much) to OPEN HIS CRATE (it has a zipper front) and get out on the car ride home. :( Houdini he is not - but most definitely tricky.
Caleb isn't feeling well (he had a headache when I dropped him off at work this morning and I just talked to him and he's still got one). I think I will make the trek to Meijer for BBQ sauce (we're having slow cooker ribs tonight with corn bread!) and plastic for the windows by myself. We're going to go to the Lights display here in J-town tonight with my sisters. I'm going to make hot cocoa for everyone to sip while on our trip...I hope we can split the cost of the car....

I LOVE SNOW! But I hate to shovel. And I hate that there is a crust of icy crap underneath the snow that my shovel doesn't want to get up. And there is so much snow on top of our back porch overhang that the door won't open all the way. I'm thinking I'll tackle that after I eat lunch and before I go get my husband.

Tonight's plan? Lights. Stay up late playing computer games with my husband. Sleep..
Tomorrow's plan?: Watch Christmas movies all.day.long and wear new pj pants found at Meijer for 10 bucks! Go to either 9:30 or 11:00 candlelight service at church.

When your doctor calls you at 9pm......

I got a call from my general practitioner last night....scared the crap out of me! She told me that she had done some research and found out that the tests we will need (chromosomal, Lupus (at least 2 different kinds of tests), Progesterone) will cost nearly 900 dollars without insurance.
I spoke to her in her office about a month ago about these tests, as well as talking to her and my OB about being referred to a hematologist/oncologist. My sister-in-law is going to school to be a doctor and is currently in a reproductive health class. She had a guest speaker, who was a Hematologist/Oncologist. The speaker, a doctor obviously, told my sis-in-law (after my SIL told her about me) that I needed to be tested for blood disorders (I've tested negative for Factor V) as well as Lupus and that Progesterone level test. All but the Progesterone test could be done here at our local hospital by our Hematologist...which would cost MUCH less because it's within our network and done at the local hospital. It would also not be categorized as a Fertility issue because it's not being ordered by a fertility specialist. Hopefully, we could trick the insurance company this way. The Pro test could be ordered by own general doctor. My own doctor was going to call the lab, find out prices, talk to the hematologist here in town and another OB to see what they do....

She at least got the prices. She told me to call the Hematologist, check to see even if they see patients like myself and she'd then write a referral. She also told me to talk to my own OB to see about the tests to get a referral to one of the hospitals around here that has a fertility specialist. A month ago, she told me not to talk to my OB until we had more information.

I cried a lot last night. I just can't handle this - going from no answers/ideas to possibly getting some answers and ideas to back where I don't know who to talk to, what to say, how to handle any of it.
My sweet, loving and patient husband told me basically to just chill out. And he's right. We can't do anything about it until the New Year anyway (we have a flexible spending account through his work, which we can use towards medical expenses but it's not available until Jan.1 - we also have 100 towards the medical bills that an anonymous friend sent us. We're unsure of who it is, but we cried and prayed the night we got that check). I HATE sitting and waiting on something that means so much for my family and to me.
We have my husband's family get together this weekend...please pray for me. There are three family members that are pregnant - my sister-in-law (not the one in medical school) who is due a month before us, a cousin due a month after us and another cousin due two months after us.
I'm not sure I feel strong enough to be around pregnant women.....I feel childish and selfish, crying over something so exciting for them. I'm bitter and angry at the entire situation. Babies make me cry ... red-headed babies that we will not be able to meet until we die.
It doesn't help that our first baby would be a year old on Saturday.

I'm going to go do dishes, maybe vacuum, shower, take the cat to the vet, put ribs in the crock-pot, wrap presents and wait for C to come home so that we can go and get a printer cartridge, Kix, Frito's (to make white chocolate concoction) and film for the windows so that we can't feel the wind blowing through them..as much...

I'm feeling the winter blues something awful right now.....

Sunday, December 14, 2008

Rambling ALL over

It's been awhile, eh?

My heart has been heavy with depression and hurt. A lot of "not caring" and pain weighs on me daily. I express it to my husband and we talk. And talk and talk. And it helps. But the pain is still there. It's feeling very raw and fresh, like an old wound re-opened. Seeing pregnant women and babies hasn't bothered me until the last week or so. It hurts now, though.
I may be seeing a Hematologist soon to see if I have any blood issues that could e causing the miscarriges. We have also decided to change our OB when the time comes. We will more than likely need to see a specialist anyhow (which our current OB is NOT) but if we can be under the care of a normal OB, we will be looking elsewhere. We are a high-risk pregnancy (when that time comes), as we have been...and we aren't being treated as such. So we are going to change. And it breaks my heart. I love this OB and he has great bedside manners and I think he's a wonderful OB for a normal woman who has a normal and healthy pregnancy. But I am neither and needed to be treated as such.

We have about 1/3 of our Christmas gifts purchased and I don't have the energy to do any more of it. But we don't have a choice. It's something that has to be done.

I have a student, a new-only been at school-not-quite-4 weeks-student, who has been talking about death and a dead baby sister. She drew two caskets (rectangular boxes with stick figures in them) in her journal and called them caskets. She is using details in her drawings and in her oral stories (that NEVER change) that only a child who had truly experienced this would know. It's concerning and confusing all at the same time. I am unsure of what the situation is - she came into our room VERY suddenly and moved from another state very suddenly. I let our director know what was going on and she said that I needed to make an appointment to talk to mom. Not too many 4 year olds talk about death in as much detail and un-changing stories as this little one does. So I left a note for mom to meet me either Monday or Tuesday at 7am..I meant Tuesday or Wednesday....so I have to go to work early tomorrow in case the little girl's mom meets me. I also have a 6-8 RedCross training for Blood Borned Pathogens in the evening that I missed when I had my D&C. I still have to make up the SIDS and Shaken Baby portion that I also missed but it's not being offered in our area as of now.

Right now, I don't know how I will be able to manage at my husband's family Christmas. Pregnant family members. Babies.

It's just all too much.

Monday, November 24, 2008

Depression and exhaustion.

People have been asking me lately how I am doing.

Honestly? I can't describe it.
I am engulfed in school work (getting ready for our Christmas program and starting to think about graduation, now that I won't be giving birth around that time) and yet, it's the farthest from my mind.
I am thrilled that I am going to decorate for Christmas, and yet, I have no energy to do so.
I am feeling normal, life has moved on and so have many others. But my heart is heavy, my mind is heavy and restless for answers.
I am depressed and guilt sinks in when I laugh. It's too early and I'm still in too much pain.
My heart breaks as I read the books I borrowed from Jen (which, I promise to return by Christmas. I can only read about 2 pages before I start crying). My heart breaks and breaks. My eyes well up with tears as I look at the ornaments we are going to order. At the necklace I want to wear around my neck until the day that I die. I need those things to feel closure. To feel something that belongs to these precious little ones.
I need to go work on stuff for conferences and all I want to do is sleep. But life doesn't wait for sleep and neither do parents. I need motivation. Serious motivation.

Sunday, November 16, 2008

Musings

I just wanted to write that I am glad that I had my D&C on the Labor and Delivery floor in the Mother/Baby wing at the hospital on the day that I did.

Well, sort of glad.

I had my first D&C on June 26th, 2007 in our hospital's outpatient surgery center (where my husband also has had tumors removed and where I had a hernia fixed just months before the D&C). They have spectacular nurses and staff that were very helpful when I had my D&C. Don't get me wrong - if I have to have outpatient surgery, I will do everything in my power to have it there.

But having a nurse and OB techs that deal with this type of thing, day in and day out...it makes a difference. I know that I am not the only one, nor will I be the last, who has had to endure the pain of walking those halls of the Mother/Baby wing while knowing that their baby is dead inside their womb, a baby that will never take it's first breath, first step, laugh it's first laugh, or love it's first love. I know that pain and I don't wish it upon ANYONE.

But I also know when a nurse knows how to handle that situation from the moment she walks in your room. I know the love and sympathy (and empathy, from a few nurses who shared their own miscarriage pain) and the pain THEY felt from our story that I could see in their eyes as they asked questions, answered our questions, put in an IV, check my vitals and later, help me in to bed and check my blood flow. I know their care and concern as they ask us if there is anything they can do or help us with. I know the care they give when they hand me papers on a support group for bereaved parents, a father's grief and a mother's time to let go. I know the concern they show as they quietly tell me why I have a card with a white rose and teardrops on my door.
They knock quietly, speak in normal terms and are honest.
They know how to handle an irrational ,emotional, distraught woman and her equally distraught husband. And hell, they even handled my parents!
I'm not saying I didn't get great attention at the Outpatient Surgery Center; however, the attention and service I got last Saturday was different. It was tailored exactly to what we needed. What I needed.

Thank you, Vicki, Christin and Jeri-Lynn for loving us, caring for us and supporting us on one of the toughest days of our lives. You are an amazing team...and I've already said that if we have to go through this again (Dear Lord, Help us) or we are blessed with a baby, I want them there with me. They are amazing women.

Thank You.

Friday, November 14, 2008

The journey - Days 3 and beyond

I realized last night that I can have coffee. Cold medicines, pain medications, anti-depressants. Things that I don't WANT to be allowed to have. But that's the way life is right now.

On Saturday, November 8, 2008, I am up by 4 am on the day of my surgery because I can't sleep and my head is so clogged that I am literally gagging every time I swallow. Caleb wakes up as I get out of bed and asks where I'm going. While he is a rather deep sleeper, I make one move to get out of bed and he's up :) I head downstairs, where the cats start meowing for breakfast. I go to let the dog out, only to remember that my parents had picked her up the night before. I miss her and the normalcy that comes with it. I want to eat and drink SO incredibly badly but I know I cannot. My fear of vomiting overtakes all other fears in my life...it is THAT bad. I play on the Internet until it's time for Caleb to get up. We get our showers and I get dressed in comfy clothes. I pack extra underwear and my own pads, as I learned the hard way the first time around that hospital pads are bad news. Bad bad news. We head up the hospital, where we meet my parents at just about 8 am. It is raining, cold and very depressing out. I feel the same way inside. I get registered and they tell me that they're sending me to the 4th floor.
Labor and Delivery floor.

I ask why and she tells me that the day surgery center is closed. I say nothing but grip Caleb's hand tighter. We head up the the labor and delivery floor. The floor where mothers are birthing babies, where babies are being born. Where healthy, LIVE babies are being swaddled and kissed on. We get on the floor and head towards the Mother/Baby wing, where the mothers and new babies are at after birth, where the families can visit. Of course, as we walk by the nurses station, they have about 6 babies out, being wrapped up and ready to taken to Mom. I nearly lose it there but we are quickly taken to the end of the hall, in the corner.
I don't mind, for once, to be put in the corner. As I am being escorted to my room, the nurse asks why we are so early. I look surprised and she tells me that my surgery is scheduled for 11am, not 10:15am. I told her that we were never told of a time change and that I came when I was told to. She was quick to bite back: Well, we're not going to do anything to do you for another hour. So you might as well just sit and pass the time.
Oh thanks.

  • By 9am, my nurse Vicki and OB tech Christin are there to do my vitals, height, weight and numerous pre-surgery questions. They tell me that they are there to help me and support me in whatever ways I or my family may need. Vicki is very delicate in asking her questions and is very sympthetic when she asks what surgery and why. She tells me to try to relax and that they'll be back later.
  • By 10am,they are back, with IV lines ready and waiting. Poor Christin tries twice to get a vein, only to have one roll and the other one never pan out. So a IV therapist is called in and she gets it in one shot. Saline solution is quickly put in my body and I am then peeing every 20 minutes on the nose. Vicki and Christin come back to check my IV line and to bring papers to sign for the surgery, as well as pamphlets, brochures and reading material on a Support Group that meets as well as information on miscarriages for Fathers and Mothers. Something we didn't get from the first D&C (maybe because it was in the Day Surgery Building across the street?) or the second miscarriage because...well, I don't know why. But they bring it and my mom reads it. They put a card on my door that has a picture of a single white rose with a few tear drops. Vicki explains that this for anyone who enters the room to know that there is no baby, no normal labor and delivery. This is to help curb any confusion, upsetting comments or unwanted comments. I wanted to keep it but it was gone from the door when we left. We asked Vicki to talk to Dr. S about doing tests on the baby, placenta, etc. She talks to him and he says that the baby had already begun to deteriorate and that there's only 2 places in MI that does that type of testing on a baby and it's extremely expensive. We really just wanted tests on the placenta, sac and the like to see if that was all okay. But there was mis-communication and it was too late.
  • By 11am, no noise of surgery. Christin comes in and tells me that they'll get me as soon as they're ready. She also tells me that she will make sure to get a gift basket (full of fruit!) for me before we leave. My dad leaves sometime in here to run an errand and Caleb goes to get my antibiotic, Vicodin and Motrin 800 from the pharmacy before they close. It's just me and my mom and we don't say much. And I'm okay with that.
  • By now, it's 12 noon. 2 hours after I was told initially that my surgery would start. Vicki comes in and asks how we are. I'm in tears from frustration and asks when we'll go down to surgery. She says as soon as they know anything, they'll let me know. I'm irritated, antsy and incredibly uncomfortable from the babies crying (which we've had the TV on the entire time to drown out the noise) and the nasty head cold. Caleb sits by me on the bed and my mom and dad just read the paper. It is quiet and I hate it. But I don't want to hear the babies. I want noise but I don't. I don't like the mundane talking that is really going nowhere.
  • 12:30rolls around and the surgery transport lady is there. Everyone keeps asking me if I'm Dr. S's patient. And I keep telling them yes. Maybe I should write it on my forehead or something. We all troop down to the large patient-transport elevator and go down to the surgery holding area. My parents are allowed, but I just needed time with Caleb alone. My parents will stay with Caleb during my surgery and wait until I get out of recovery. They'll leave after that because I know I just can't handle them after surgery. My mom kisses me goodbye and my dad does too.
We go back to the holding area, where the nurse, Trish, knows Caleb from work. She tells us she's had 2 (maybe 3) miscarriages and understands all too well. Tells me if I need anything to yell. Another nurse, who I can't remember her name, gives me 1/2 of something to relax me, as well as Zantac for my acid reflux and some sour drink to help me not puke. I meet the anesthesiologist, Dr. K and discuss what has happened in previous surgeries, including my reaction to the anesthesia after my first D&C. We discuss the options, especially because I have a nasty head cold. She tells me that she wants to consider doing a spinal block because if I was intubated, I could develop pneumonia because of the head cold. I am in tears of fear and anticipation, but ultimately decide to do the spinal block. My anxiety makes my heart rate spike, so in order to deter the same nasty reaction as I had from the last D&C and spiking heart rates, they give me the second 1/2 of the loopy medicine. I begin to feel it. Trish comes back and tells me it's about time. The assistant to Dr. K, a nice older man, tells me that he's going to take me back, along with one of the surgery nurses, Donna. I kiss Caleb goodbye amidst tears and I am gone.
I am wheeled back to the freezing cold surgery room. Someone says to call Dr. S and that it is 13:30...1:30. Nearly 3 and a half hours after surgery was originally scheduled. Dr. K is here, along with the nice man (he said Dr.....but I can't remember), nurse Donna and another nice nurse, Anna. Anna and Donna help move me to the surgery table. It is extremely cold. My head feels heavy and I am in and out. They help me sit up, put a pillow in my arms and tell me to lean over. Dr. K does the spinal and the other Dr. and Anna stand at my head. They keep telling me to relax and not tense my right arm. I keep thinking that I'm not, but I guess I was? As soon as Dr. K tells me that I am going to feel pressure, my hips feel like they are going to blow up. Actually, blow out of my body. And then my legs are immediately tingly, like when they are falling asleep. Only the feeling is from my toes up to my hips. I am laid back down on the table, where my arms and belly are strapped down. My feet are placed into some boots that look like skiing boots. Those are then strapped into over sized stirrups that are found in every OB/GYN office. Dr. K's assistant tells me to relax and an oxygen mask is placed over my nose and mouth. I fall asleep, tears streaming down my face. I wake up once during surgery, but only enough to hear. I hear the suction, the suctioning of my baby and my body being ripped apart. I am aware of what's going on and quickly go back to sleep.
I wake up again at 2:05, only 35 minutes after being taken back to surgery. I am immediately asked what hurts/has no feeling. I can feel my uterus contracting regularly (thanks to the Pitocin I will be enduring for the next 4 hours) but can feel nothing past hips. And my right arm also has no feeling. Someone says that I had to be given more medication to sedate me because I kept coming in and out during surgery. Hence, the noise.
I am moved to recovery holding area, where my nurse happens to be my hairdresser's mother in law. Her name is Skip and she's great. Dr. S comes over and apologizes but I don't really understand what he's saying. Caleb tells me later that when Dr. S had called to tell Caleb that I was out and everything went well, that I was the 5th of 6th surgeries that day that were being performed by 3 of the OB/GYN's. That is why we were so late without any knowledge. Excuse? No. Explanation? Definitely.
My left leg is getting feeling back, but nothing else.
At 3:00, I am wheeled back to my room. I don't have my glasses on, but I can see Caleb holding my bright maroon purse. The transport person giggles when I tell her that that is DEFINITELY my purse, but can't identify who's holding it :) Caleb grabs my hand and lets me put my glasses on. I am then wheeled back to my room. Vicki, my afternoon OB tech Jeri-Lynn, the transport person and another OB tech have to roll me onto my bed, as I still have no feeling in my legs. Well, my left leg is sort of there, but not my right or my hips. I get settled into bed and Jeri-Lynn checks my vital, while Vicki checks my blood flow on the hospital pad in the MESH UNDERWEAR. Holy cow, I do NOT remember those! I don't look because it scares me a bit. Vicki tells me I'm okay but that I can't leave until I eat, pee and am able to feel my entire lower part of my body. Caleb and I just sit and talk for a bit. Jeri-Lynn and Vicki come in and check on me a few more times. Dinner comes, and I have to get permission to make sure I can eat. It's fried chicken strips, jello pudding, cold fries, ice cream, milk, water and I don't think there was a vegetable but I'm not sure. I eat a bit but not a lot - Caleb starts to eat until we realize that they're determine if I can go home on how much I eat and that he probably shouldn't eat anymore and fake them into thinking I am hungry if I'm really not. But Vicki said it was fine that I only ate a bit. We watch television until Jeri-Lynn and another OB tech (I didn't get her name) come in to check my blood flow and to help me get to the bathroom. At this point, I can feel everything but my pelvic area. Not so good when you've got to pee and you can't feel yourself peeing! So they help me go to the bathroom and ultimately, have to help me sit because I can't feel my butt. They turn the water on like we do to the kids who are potty training at the daycare because I can't feel the urge to go to the bathroom. I pee and pee and when I wipe, all there is is bright red blood and clots.
I resist the urge to start crying uncontrollably.
As I get up to walk out, the cranky OB tech bitch quickly points out that I need to wash my hands. No shit Sherlock - I still had to manage to get up with a numb ass, an IV line full of Pitocin and a shaking body, thankyouverymuch. Jeri-Lynn is quick to help me turn the water on and help me wash my hands, and get back into bed. I asked about the aforementioned fruit basket and the grumpy bitch OB tech lady tells me that there aren't anymore and I shouldn't worry about. Yet, I do. There are notes on other doors - can't leave without fruit basket. And mine? None. Isn't it bad enough that I had to endure the crying of babies all day while I carry my dead, unborn child in my body and yet you can't get me a damned fruit basket. I'm still miffed about that.
After the bathroom trip, I just sit and wait for my body to become un-numb. Eventually, about 5:45, Vicki comes in and says that I'm okay to get ready to go home. I get dressed, with the help of my husband and am ready to leave. As we are sitting there, a knock on the door and I get a SECOND dinner delivered. Evidently, I was supposed to be really hungry. That dinner even had CHEESECAKE on it! But I just wanted to go home and wasn't up for more hospital food, so we sent the nice lady away.
Vicki came back, had me sign some paperwork, gave me discharge instructions and helped me out of bed. She then genuinely asked if I needed ANYTHING, I could call the L&D floor and ask for her or Jeri-Lynn or Christin (my first OB tech). She asks if they have found anything as to why we are losing babies and we tell her no. She tells us that she'll be thinking of us as we continue on this journey. She hugged us and we walked out.
We got home and our dear friends, Amy and Sid brought some dinner over for us. I fell asleep on the couch where I stayed much of Sunday and Monday.
As I wrote before, I feel physically fine. My back was sore from the spinal tap on Sunday and Monday, but very little bleeding and cramping. I am tired easily, but as my mom put it, I DID just have some major surgery.
Emotionally, I'm a mess. It seems to hit the hardest at bedtime/times when I'm just laying down and it's quiet. I cried when I ordered a Coke the other day. I cry when people offer dinner (we've had some yummy chicken and dumplings, chicken and noodles and chicken pot pie that friends and family have brought for us and we got stuffed shells tonight!). I feel weird accepting meals when I'm fine to do it myself, but then again, I am not fine. I just lost my third child. My precious baby that died inside of me and that I couldn't save.

I couldn't save them. And that makes me feel so incredibly powerless. And depressed.